A blog for everyone


Saturday 23 November 2019

Do an online search for Parkinson’s blogs and you will find hundreds. There are also several sites listing blogs. It took a while but this blog is now featured on sites like Feedspot’s top 60 Parkinson’s blogs, Parkinson.FIT and Parkinson’s Journey.

Who are the people behind all these blogs?

I’ve managed to meet a few of them and I can report that, like me, they are ordinary folk inspired to write by extraordinary circumstances.

But then again, they are all different.

For example there is Twitchy Woman, real name Sharon Krischer, from Beverly Hills, California, whom I met at the World Parkinson Congress in Kyoto. She writes about her personal experiences with the disease but also provides a huge amount of advice for others.

In contrast there is Jelly Woman, who is British but, like me, chooses to remain anonymous. She writes beautifully though not a lot about Parkinson’s. Mostly she just talks about her day to day. “Wobbling through life with Parkinson’s” is her tagline.

Something of a legend in my local area is Brian Lowe who writes a blog for the South London Younger Parkinson’s Network. Brian is full of positivity and pens a lot of motivational pieces. It was Brian who encouraged me to go to Kyoto and I can’t thank him enough for doing so.

The blogger I met most recently is Simon Stott, an affable Kiwi based in London who maintains the excellent Science of Parkinson’s site. Simon doesn’t have Parkinson’s himself but is one of the lead researchers at the Cure Parkinson’sTrust. I had the privilege of meeting him at a drinks event for donors to the charity. Earlier in the year, I was proud to have raised almost £3,000 from family and friends towards their research programme.

These are just a few of the many Parkinson’s blogs out there. It seems that one positive side effect of Parkinson’s is this vast amount of creative and informative output.

Every cloud has a silver lining.

Popular posts